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Dementia Extract

Practices have received a series of communications from the Health and Social Care Information Centre (HSCIC) on a forthcoming GP extract entitled ‘Quality and Outcomes Framework (QOF) Subset Extract for Dementia Prevalence 15/16’ (also known as SoS Dementia). The HSCIC confirmed that practices were required to participate in this extract through the Calculating Quality Reporting Service (CQRS) by 31 August, and that they are legally required to comply under Section 259(5) of the Health and Social Care Act (HSCA).

To clarify, this extract is unrelated to QOF, despite being labelled a QOF subset. It was given this name because the data closely matches a subset of QOF indicators. GPC has asked the HSCIC to use different terminology in future to avoid any confusion.

The HSCIC has confirmed that 617 practices are yet to enable this collection through CQRS, and they have written to these practices to request they accept the extract by the end of Thursday 29 September 2015.

GPC recommends that practices comply with this request, which is a legal requirement under the HSCA. The Joint GPC & RCGP IT Committee (JGPITC) was consulted on this extract, as confirmed in the HSCIC’s communications. The Committee accepted the legal basis of this collection through the HSCA, and that the extract had been approved by both the General Practice Extraction Service (GPES) Independent Advisory Group (IAG) and the Standardisation Committee for Care Information (SCCI).

The collection is of non-identifiable, aggregated data specifying the number of people at each practice with a diagnosis of dementia, broken down by age and gender, as well as the number of the practice’s total registered population. This is non-identifiable data and therefore not subject to the fair processing provisions of the Data Protection Act. There is therefore no requirement to inform patients. Further information is provided within the Data Provision Notice sent to practices.

The 2015/16 collection follows a similar collection from practices in 2014/15, published on the HSCIC’s website. The HSCIC intends to publish 2015/16 data on its website from October.


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